This Is How We Roll…

If you remember from my last post, “Don’t Tell Me I’m Losing My Son,” I was having a difficult time finding joy amongst The Boy Child’s complicated health situation. I felt like I was swimming, and swimming, and I wasn’t getting anywhere, except closer to the bottom of the pool.
But, if you also recall, sitting there on the bottom, I realized that I needed a reminder that life is what I make of it.
In keeping with my desire to live intentionally, I looked back over my photos from the last couple of months, and suddenly, I was able to see things in a different light. Yes, there were times when The Guy found himself pulling a wagon, for a child that was too weak to walk, and there were nights when I went out with my friends, only because I knew that I needed to step out of “epilepsy” for a minute and take a breath. But looking back, I was able to see what I hadn’t necessarily seen in that moment; joy, family, memories, and life.
I saw us living life, despite the fact that it wasn’t always perfect.
So, since you’ve listened to me cry over the last few posts, I hope that you will join me in this one, while I take you back over the last few weeks to laugh, giggle, and smile with with us, as we live our lives.

And what better way to start, than to go back in time…









We can’t forget Easter…

When I dragged the kids to an embarrassing amount of Easter Egg Hunts.


Can you find The Boy Child?

When I wasn’t opening thousands of plastic eggs, the Platonic Hubby and I took the kids to a family fun center…

…. Where she had more fun than the kids did.



Even though she got herself stuck to a velcro wall.


That was a bit much for us, so next time we just went to the movies.

It has FINALLY warmed up around here, and we have been taking full advantage of it!


Especially The Guy.

One evening, the kids even pretended that they were camping outside.

My poor kids are so camping neglected, that they think you need to take a lawn mower to clear your space, and lug your entire gas grill there so you don’t starve to death.


Another weekend, we went with a group of friends to a touch-a-tractor event. The Boy Child spent hours climbing on twenty or so different tractors, until he settled into the kid’s play area and we eventually had to pry him away for dinner.

#FarmLifeBeatsCamping #IWillLieToMyKidsForever



The Boy Child deserved to have a good time though, because he’s had a lot of medical procedures this month.

It wasn’t fun, yet I’d be lying if I said I didn’t get a good laugh out of him being given Versed before anesthesia, and watching him get loopy as hell. Here he is using the TV remote as a telephone, to talk to the cartoon characters in the TV, and ask them to come out and play with him.

Thankfully a lot of the testing has been able to be done at home, so that we could continue on with our lives.

We even took him and all of his wires, to go feed the ducks.




And somehow we got talked into taking the kids paddle boating while we there.

I have to say though, after all those family days, it was nice to get a break from the kids and hit the Comedy Club with my In-Law friend, and our husbands.

But, the next day our lives went right back to the kids when The Guy took The Boy Child on a father-son outing.
Both kids started therapeutic horseback riding, and so far we have seen some pretty amazing results!



Speaking of animals, The Girl Child has been thrilled to take our ferrets Frank and George outside to enjoy the weather.


The Guy and I continued to fit in little breaks where we could.

Speaking of breaks, we’ve made sure to plan plenty of family “relaxation” breaks, like the pajama-movie-taco day we had a few weeks ago.

And a trip to a nearby nature center.




We’ve also done a few bigger things, such as head to the Kalahari in Wisconsin for Easter. We’d gotten a gift card for our Wedding, and having no family to spend Easter with, a little getaway sounded marvelous!


Unfortunately I got very sick on this trip and ended up in the hospital, but not before we had at least one great night!

The Boy Child on the other hand, did not find the go-karts at the hotel to be very relaxing.

When we got back, we went to a few birthday parties, like this one where they made dick balloons for the kids…

… and ovaries! Or whatever the hell they were actually supposed to be. A sword and… a pacifier? No clue. Flower maybe?

Speaking of birthdays, I had one!


The Girl Child made me a card, got me lipstick, because “you love lipstick!” and coins, because “grown-ups love getting money in their cards!”

Gosh, I really am proud of how I’m raising that kid.


In other news, we had an event to go to one night…

… And The Guy wore this snazzy jacket!

While we were there, I snapped my favorite photo in this whole post, (nearly) my entire blog “cast!” Here is myself, my In-Law friend, The Platonic Hubby, The Guy, and Mr. Attorney Man!!

If only Frisbee Boy’s Mom, and a couple of friends, could have been there to complete the picture.

The next morning found The Guy sleeping like this. He said his head was cold.

So yes, we’ve definitely had a lot of medical trials over the last few weeks, but life didn’t stop. It kept moving, and we moved with it, and looking back with a fresh perspective, it looks like we were pretty happy.

In fact, I hadn’t even noticed something so obvious until just now.

Yes, The Boy Child has been sick, but The Girl Child, has been amazing! Do you see her wheelchair in any of those pictures?

Because I don’t.

This last round of therapy, combined with a growth spurt that seemed to add some muscle on her, has done her body well! Last summer, we took her chair with us anytime we knew she would be walking for more than fifteen minutes straight, but it just dawned on me that we haven’t needed to do that in several months!

So life, it’s a funny thing really, and I’m realizing more and more that it’s not a sink or swim type of deal.

Sometimes, you just need to kick back and float.


And I guess, if I can’t swim against the current right now, then this isn’t the worst place to float.

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  • Eatabagofrichards
    May 17, 2017 at 12:35 pm

    Glad you've been able to see some of the good moments. They can balance out the bad ones, if we will look for them. 🙂

    • NotMyShametoBear
      May 17, 2017 at 7:01 am

      True that sister, true that.

  • Anonymous
    May 17, 2017 at 2:44 pm

    You are soo positive!! I love that.

    • NotMyShametoBear
      May 17, 2017 at 7:01 am

      Oh, it comes and goes lol, as you have seen. But thank you for noticing my upswing lol !

  • sues2u2
    May 17, 2017 at 3:59 pm

    Seeing your little family doing some fun positive things amidst the frustrating medical ones is so uplifting. Way to go! And congratulations on the girl child not needing her wheelchair! That's fantastic! We've been getting ready for school to get out and discovering I'm allergic to soy which is in all the food stuff. Luke chocolate. Oh well. Life moves on.

    • NotMyShametoBear
      May 17, 2017 at 7:01 am

      Aw, thank you 🙂

      Oh no on the soy 🙁 Soy is in everything! Have you tried Enjoy Life chocolate bars or chocolate chips? I can’t vouch for them personally because I’m too chicken to try one, but my kids eat them as if the world was ending, and they are soy free.

      Just a thought!

  • Carolyn De Neut
    May 17, 2017 at 4:40 pm


    • NotMyShametoBear
      May 17, 2017 at 6:58 am


  • Facebook
    May 17, 2017 at 7:53 pm

    Ugh dance and braces [picture]

  • Facebook
    May 17, 2017 at 7:53 pm

    Kids and projects at work- photo is my view as I am measuring guardrail for an upcoming highway project [picture]

  • Facebook
    May 17, 2017 at 7:54 pm

    Planting vegetables and flowers, and enjoying being outside. [picture]

  • Facebook
    May 17, 2017 at 7:55 pm

    This tiny guy – he was orphaned at 8 days old. My friend Liz adopted him but she works 8 hour shifts. So my housemate Deirdre and I day sit for him while she is at work. Here's when he first arrived – see how bitty. [picture]

  • Facebook
    May 17, 2017 at 7:55 pm

    And here he is, older. He's about 6 weeks now. 🙂 His name is Umbreon, after a Pokemon character. [picture]

  • Instagram
    May 17, 2017 at 7:56 pm

    Life in general – work, taking care of my parent's incontinent dog while they are on vacation (and my incredibly needy pup), and trying to convince my husband why buying a house is a good idea right now. Not to mention the extracurriculars – tap dance classes, teaching CPR to new city EMTs, and trying to find time to spend with friends. Followed your blog for a while now; coming out of lurking.

  • Facebook
    May 17, 2017 at 11:54 pm

    Working as many hours possible as my ex husband keeps taking me back to court. I want our daughter to attend a school that ranks 49th in the state and he wants her to go to school where it ranks 200. Because it's more convenient for him. Our limited case manager ruled in my favor so naturally the ex is fighting it. Heres a pic of my baby girl. [picture]

  • Anonymous
    May 18, 2017 at 1:39 am

    you have exceptionally white teeth. Hiw did you have that if you don't mind me asking?

    • NotMyShametoBear
      May 18, 2017 at 6:24 am

      I use a box of crest white strips once a year or so, but I think a lot of it is that I don’t drink coffee or red wine. Or maybe I just got lucky?

  • yea yea
    May 28, 2017 at 4:50 am

    Love ur blog 2 thumbs up!!!!!!!

    • NotMyShametoBear
      June 20, 2017 at 2:27 am



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